Having a rare disease can be very depressing, but it’s really good to know that you are not alone in your battles. There will be people who would be more than willing to help you out. people who suffered the same fate and can definitely understand you and would know the right things to say to soothe you, or just be a friend.. I actually did not stumble upon this site mindlessly. my eldest sister sort of pushed me to sign up. She’s on the other side of the world, by the way, so the pushing was done verbally on FaceTime. And I would like to thank her for insisting on this because this is one of the best things that has happened in a long while. Initially, I was skeptical because the first time I opened the site, all I had read were seizures occurring after the operation, and I became afraid. Now I am active in posting discussions and sharing my experiences with my fellow survivors. that’s it for now. I will try to update you with my activities as I have planned a lot.